The title of thread does not refer to me, but the girl the video below is about.
If anyone here or anywhere has medical knowledge of what this may be or any connections to sources specializing in neurology, etc, please contact the source in video description. Spread the word to others!
PLEASE WATCH ENTIRE VIDEO!
http://www.youtube.com/watch?v=jU29dM_rKXM&feature=sub
It's easy to assume whatever she has is so severe and progressed so far that she can't be saved at this point, but it's better to try something than nothing. There may be a glimmer of hope. I have sent this to friends and family via email, and posted it on streams/ and social networking sites. Even linking the video and asking people to watch is helping in some way.

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11-05-2010 #1♥ へいわ ♦ あい ♥
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Urgent! Help! Only 3 weeks to LIVE!
Main LBP Profile: h0tNstilettos
Other LBP Profiles: Hana_Kami
LBP Hobby: Extreme LBP Platforming
LBPC member since August 2009. Started petition for the heart emoticon that we now have.
I am NOT from Japan, w. I was born in USA to japanese mom and caucasian dad. English is my primary language. I know some japanese, but not a lot. I am a nice girl until people take my hobby out of context. Thank you! Stay kawaii! ^_~\/
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11-06-2010 #2
I understand that this is important and obviously is quite distressing for their family, but
Has she not seen any doctors or anything? I mean, they probably would know a lot more than most of us here about it...The Mine (Spotlighted)| The Mine 2 (Spotlighted) | Tunnel Vision | Mining Mishaps (Spotlighted) | The Lost (Demo) (MM Picked!)
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11-06-2010 #3
Most likely doctors in her area don't know how to treat that desease, whih its why they're spreading the word online and try and find a medical expert, or anyone with enough medical experience to know what it is and if there's any way to treat it.
Its not asking anyione to view it to cure her, but to at least spread the word to as many people as he/she can so the chances or finding someone who can indeed help, increase.
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11-06-2010 #4♥ へいわ ♦ あい ♥
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@standby250:
That is why I mention to watch the video. In the video a friend says she has seen many doctors and none of them know what it is.Main LBP Profile: h0tNstilettos
Other LBP Profiles: Hana_Kami
LBP Hobby: Extreme LBP Platforming
LBPC member since August 2009. Started petition for the heart emoticon that we now have.
I am NOT from Japan, w. I was born in USA to japanese mom and caucasian dad. English is my primary language. I know some japanese, but not a lot. I am a nice girl until people take my hobby out of context. Thank you! Stay kawaii! ^_~\/
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11-06-2010 #5
doesn't the video say MS?

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11-06-2010 #6
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11-09-2010 #7♥ へいわ ♦ あい ♥
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- h0tNstilettos
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- hopping across platforms in the LBP dreamscape
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It's not MS or stiff personh syndrome. In the updated new video below, kandee explains people were spreading false or uninformed information. Thankfully word spread around and tons of people have contacted with aid. An updated video has been added just 5 hours ago of this post. Link below.
http://www.youtube.com/watch?v=KA02cS0ysIg&feature=sub
Youtube deleted the old video because of all the spam and hateful comments, which is really heartless and sad that there are people like that.
People accused the video of being a scam to get money even though she asked no one for money and even made that clear. The intelligence, or lack of, of some people is mind blowing. Luckily most, especially ones that know kandee well enough knows it isn't a scam. You can put one and one together and figure that out, especially if they paid attention to the original video.
Anyways, I'm glad help is coming.
EDIT: Correction, the 1st/priginal video is still up. It hasn't been deleted yet.Last edited by Hana_Kami; 11-09-2010 at 08:47 AM.
Main LBP Profile: h0tNstilettos
Other LBP Profiles: Hana_Kami
LBP Hobby: Extreme LBP Platforming
LBPC member since August 2009. Started petition for the heart emoticon that we now have.
I am NOT from Japan, w. I was born in USA to japanese mom and caucasian dad. English is my primary language. I know some japanese, but not a lot. I am a nice girl until people take my hobby out of context. Thank you! Stay kawaii! ^_~\/
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Thanks!
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